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Search: Posts Made By: kck
Forum: General Resources 05-09-2007, 09:37 PM
Replies: 3
Views: 2,497
Posted By kck
Yes... its the one next to VBF, at Rosevelt...

Yes... its the one next to VBF, at Rosevelt Hospital, not the Beth Irasel location.

thanks
Forum: General Resources 05-09-2007, 05:44 PM
Replies: 3
Views: 2,497
Posted By kck
anyone know if the 'provided housing' at 10 Amsterdam Ave in NY

Hi,

Has anyone stayed at 10 Amesterdam Ave apartment in New York city?
Next to the Roosevelt building?

Does it have high speed internet?
I'm assuming its a decent place, okay to stay at for a...
Forum: Port Wine Stain Help and Resources 02-24-2007, 10:19 PM
Replies: 1
Views: 1,207
Posted By kck
immediate help/attention???

hello,

I've only been dealing with PWS or Hemangioma or PHACES (as our pediatrician, others on this site have said) ... for 3 days now.

(FYI: the marks are right forehead, to right eye, to right...
Forum: Port Wine Stain Help and Resources 02-23-2007, 04:48 PM
Replies: 9
Views: 1,649
Posted By kck
thanks... I made an apt for next week.... so,...

thanks...

I made an apt for next week....

so, I'm assuming Dr. Buckingham is a "great" doctor for PWS? Anyone have any opinions on this? I would just assume I would get a second opinion???
BUT...
Forum: Port Wine Stain Help and Resources 02-23-2007, 04:41 AM
Replies: 9
Views: 1,649
Posted By kck
thanks... So Dr. Levy is in Houston.... The...

thanks...

So Dr. Levy is in Houston.... The Texas Children Center???

I've read, talked to my friend --- he is a great doctor to see?
any thoughts?

I'm in Austin --- if there is anyone in Austin...
Forum: Port Wine Stain Help and Resources 02-22-2007, 10:03 PM
Replies: 9
Views: 1,649
Posted By kck
2 weeks old...

well.... I'm trying not to look at all the bad stuff and no one (medically) has told us our little baby girl has PWS.... but the pictures are way to close.

the descriptions are too telling.
I can...
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