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Search: Posts Made By: KristieinStMarysGA
Forum: AVM Help and Resources 01-12-2009, 05:40 PM
Replies: 4
Views: 1,329
Posted By KristieinStMarysGA
I wish I could help, but I don't know exactly...

I wish I could help, but I don't know exactly what he is going through as I have a VM throughout my arm.

Hank would be a good person to talk too, hopefully he will see this.


Kristie
Forum: AVM Help and Resources 11-17-2008, 05:06 PM
Replies: 3
Views: 969
Posted By KristieinStMarysGA
Heart Palpatations and VMs

Okay, so I have been dealing with some heart palpatations, actually it's always been that way.

I just found out that is not normal to feel your heart beating all day!

I only found out about a...
Forum: Help and Resources for Hemangiomas 10-29-2008, 02:42 PM
Replies: 2
Views: 791
Posted By KristieinStMarysGA
Mind you I am not a doctor, but it sounds like...

Mind you I am not a doctor, but it sounds like you aren't dealing with a hemangioma.
I would ask one of the doctors listed on the ask an expert section.

Good Luck!
Forum: AVM Help and Resources 09-30-2008, 02:36 PM
Replies: 5
Views: 1,801
Posted By KristieinStMarysGA
Vicodin did nothing for me when I was dealing...

Vicodin did nothing for me when I was dealing with a flare up. I have yet to be pregnant so I cannot offer any advice from that point of view.

I would ask one of the experts, (Dr Rosen?) they may...
Forum: AVM Help and Resources 09-30-2008, 02:34 PM
Replies: 8
Views: 2,031
Posted By KristieinStMarysGA
Where are you located? My doctor is Wayne Yakes...

Where are you located?

My doctor is Wayne Yakes in Colorado and he is fantastic!! Try the find a doctor page and I bet someone will be willing to work with Medicaid.

Good Luck!!
Forum: AVM Help and Resources 09-28-2008, 02:42 PM
Replies: 8
Views: 2,031
Posted By KristieinStMarysGA
I feel your pain (literally too!) My doctor told...

I feel your pain (literally too!)

My doctor told me that pregnancy, menstrual cycles, and the pill can all cause changes to my VM. I was prescribed the pill for some ovarian cysts and was told by my...
Forum: AVM Help and Resources 09-13-2008, 12:21 AM
Replies: 3
Views: 1,303
Posted By KristieinStMarysGA
I too have been suspected of having KT Syndrome,...

I too have been suspected of having KT Syndrome, as I have a left arm VM, with a major difference in the thickness of my left arm.

Although, I don't have a visible PWS, the doctors have yet to agree...
Forum: AVM Help and Resources 09-01-2008, 02:47 PM
Replies: 1
Views: 1,229
Posted By KristieinStMarysGA
We never know what to expect with these...

We never know what to expect with these things.

I have a VM throughout my left elbow and forearm, I have gone through similiar doctor issues and I have found that the best bet is to see a specialist...
Forum: AVM Help and Resources 07-15-2008, 04:04 PM
Replies: 3
Views: 1,370
Posted By KristieinStMarysGA
I understand how you are feeling, I have a VM...

I understand how you are feeling, I have a VM from left elbow/forearm with a lot of invovlement with the elbow joint. When I sought treatment (after finally getting the right diagnosis!) I didn't...
Forum: AVM Help and Resources 07-15-2008, 03:32 PM
Replies: 2
Views: 1,287
Posted By KristieinStMarysGA
I know the feeling! Not sure about your ability...

I know the feeling! Not sure about your ability to travel, but Dr Wayne Yakes in Colorado is outstanding! He is my doctor and think he is just wonderful. He works out of Swedish Medical Center in...
Forum: AVM Help and Resources 06-08-2008, 05:41 PM
Replies: 2
Views: 1,320
Posted By KristieinStMarysGA
Sadly, I don't have any advice to offer you. I...

Sadly, I don't have any advice to offer you.

I have a VM too, but nearly as complicated as Alex's, if I were you I would use the "Ask an Expert" portion of the site and see what they say.

My...
Forum: AVM Help and Resources 03-08-2008, 09:47 PM
Replies: 5
Views: 1,699
Posted By KristieinStMarysGA
I did ask her mom what type of laser was used and...

I did ask her mom what type of laser was used and she didn't know.

Poor little thing was very swollen, but kept on smiling.

Hope your little one is doing okay.
Forum: Living with a birthmark - my story 03-05-2008, 03:03 PM
Replies: 17
Views: 4,044
Posted By KristieinStMarysGA
Thank you for sharing your story. I admire you...

Thank you for sharing your story.


I admire you so much, your parents seem to have done a fantastic job.

Your story is going to help a lot of the parents on here.

Thank you so much for sharing.
Forum: AVM Help and Resources 03-01-2008, 12:22 AM
Replies: 5
Views: 1,699
Posted By KristieinStMarysGA
I will, she actually goes back for another...

I will, she actually goes back for another treatment on March 3rd.
Forum: AVM Help and Resources 03-01-2008, 12:22 AM
Replies: 1
Views: 1,244
Posted By KristieinStMarysGA
I was told that I had an AV Fistula in my...

I was told that I had an AV Fistula in my forearm, the way it was explained to me is like you said one was a direct connection between artery and vein (AVF) and the other had multiple connections...
Forum: AVM Help and Resources 02-21-2008, 03:28 AM
Replies: 5
Views: 1,699
Posted By KristieinStMarysGA
Hey! Believe it or not, I have a neighbor who...

Hey!

Believe it or not, I have a neighbor who has a granddaughter with a VM on her lip, she has just had her first laser treatment and it looks good so far. I'm not sure on what type of laser was...
Forum: Living with a birthmark - my story 02-01-2008, 05:27 PM
Replies: 0
Views: 1,719
Posted By KristieinStMarysGA
Livin' with a Venous Malformation..

Hey!

I have had my story posted on here, but I wanted to update it.


I'm 29 years old and wasn't diagnosed (correctly!) until I was 26. I have a VM throughout my left elbow/forearm there isn't...
Forum: AVM Help and Resources 02-01-2008, 02:49 PM
Replies: 6
Views: 2,000
Posted By KristieinStMarysGA
Hi, I'm 29 years old with a VM throughout my...

Hi,


I'm 29 years old with a VM throughout my left elbow/forearm, when I was about 10 or 11 doctors told my parents that my arm should be amputated (I wasn't diagnosed with a VM at that point) my...
Forum: AVM Help and Resources 06-19-2007, 08:34 PM
Replies: 12
Views: 3,904
Posted By KristieinStMarysGA
Kim, I'd like to hear what Dr.Rosen says to...

Kim,

I'd like to hear what Dr.Rosen says to you, as I was hoping radiation could be an option for me down the road as well. Having been told that for me to have to more sclerotherapy the risk was...
Forum: AVM Help and Resources 06-05-2007, 07:23 PM
Replies: 6
Views: 2,264
Posted By KristieinStMarysGA
It's enough to drive one insane!! Dr.Paz is...

It's enough to drive one insane!!

Dr.Paz is really great he was very patient and explained everything to my parents who "needed" to come along with me. Someday they will realize I'm all grown up and...
Forum: AVM Help and Resources 06-05-2007, 05:03 AM
Replies: 6
Views: 2,264
Posted By KristieinStMarysGA
At this point there isn't one, besides just...

At this point there isn't one, besides just watching it. I will take asprin for the pain as needed and just "suck it up".

Seems this will be something I just need to learn to live with, I suppose it...
Forum: AVM Help and Resources 06-04-2007, 11:16 PM
Replies: 6
Views: 2,264
Posted By KristieinStMarysGA
Results from latest MRI

Well, the news is good I guess.

From my latest MRI film the doctor saw nothing other than the residue from what Dr.Yakes treated. He also did an ultrasound and saw "nothing too out of the normal...
Forum: General Resources 06-01-2007, 02:15 PM
Replies: 10
Views: 3,794
Posted By KristieinStMarysGA
Monday, I meet with a "team" don't know...

Monday, I meet with a "team" don't know who is on the team besides an interventional radiologist, I'm hoping there is a surgeon also as I want to discuss surgical options but I'm not getting my hopes...
Forum: General Resources 06-01-2007, 03:42 AM
Replies: 10
Views: 3,794
Posted By KristieinStMarysGA
Great news!! I had my MRI/MRA today, and it...

Great news!!

I had my MRI/MRA today, and it lasted nearly 3 hours. Needed to switch machines mid-way through as they wanted me in the "newer" one.

What a long day......
Forum: AVM Help and Resources 05-29-2007, 07:20 PM
Replies: 3
Views: 1,667
Posted By KristieinStMarysGA
Is it something you are looking into??? Seems...

Is it something you are looking into??? Seems like it could be an option.

Let me know if you research it further, I might even ask the doctor about it at my appointment.


Kristie
Showing results 1 to 25 of 130

 
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