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Posts Made By:
mperron
Forum:
Help and Resources for Hemangiomas
02-06-2011, 09:50 PM
Replies:
3
what to do
Views:
4
Posted By
mperron
First off don't blame yourself! Hemangiomas are...
First off don't blame yourself! Hemangiomas are not caused by anything a mother does!!! They are just one of those anomolies that happen in the complicated process of a developing fetus.
Speak to...
Forum:
Help and Resources for Hemangiomas
01-14-2011, 05:44 AM
Replies:
7
1 month old son has growing Hemangioma
Views:
8
Posted By
mperron
Hate to be a canadian downer, but my experience...
Hate to be a canadian downer, but my experience with the canadian system is that many doctors take the wait and see approach which isn't always the best course to take in all cases.
In addition,...
Forum:
Help and Resources for Hemangiomas
01-14-2011, 05:36 AM
Replies:
13
Practical tips in monitoring Propranolol? - Nervous mom here.
Views:
14
Posted By
mperron
I too had the same problem with my little guy in...
I too had the same problem with my little guy in terms of getting him on a schedule. I emailed his cardiologist and explained my delima. My son is on 3 doses a day. The cardiologist said that it is...
Forum:
Help and Resources for Hemangiomas
01-14-2011, 05:27 AM
Replies:
33
5 week old with forehead hemangiona-please help!
Views:
34
Posted By
mperron
Hi Katie, I find that their is a lot of...
Hi Katie,
I find that their is a lot of misinformation about hemangiomas, even from medical professionals (i.e. midwife) whom we put a lot of trust and faith into their opinions. Sadly though, I've...
Forum:
Help and Resources for Hemangiomas
12-12-2010, 05:15 PM
Replies:
20
New to site info needed please help
Views:
21
Posted By
mperron
Hello my Canadian neighbor, I live in Manitoba....
Hello my Canadian neighbor, I live in Manitoba. It upsets me so much to see other canadians struggling to get the care they deserve for their children. My son had a compound h very similar to your...
Forum:
Help and Resources for Hemangiomas
12-03-2010, 08:54 PM
Replies:
13
Practical tips in monitoring Propranolol? - Nervous mom here.
Views:
14
Posted By
mperron
I understand your anxiety Jennacl. My son's...
I understand your anxiety Jennacl. My son's doctor (dr. Waner) said the drug is very well tolerated. My son has been on the drug for slightly less than a year and has had no side effects...
Forum:
Help and Resources for Hemangiomas
12-03-2010, 08:08 PM
Replies:
12
Ugh, Hemangioma Blues
Views:
13
Posted By
mperron
I think when are children are born with several...
I think when are children are born with several medical problems ie. preemie, heart defect, hemangiomas, that we do develop a special bond with our child. By watching our precious children experience...
Forum:
Help and Resources for Hemangiomas
10-15-2010, 05:17 AM
Replies:
4
Propranolol and Reflux/Gastric upset
Views:
5
Posted By
mperron
My son had reflux and at first I thought the...
My son had reflux and at first I thought the propranolol was making his reflux worse. His cardiologist and Dr. Waner said that they have not seen any cases of propranolol making reflux worse.
It's...
Forum:
Help and Resources for Hemangiomas
09-13-2010, 05:12 AM
Replies:
12
Propanolol users
Views:
13
Posted By
mperron
Mom of 3; I'm surprised your daughter's dosage...
Mom of 3; I'm surprised your daughter's dosage hasn't increased. My son is 9 months and his dosage was increased to 2ml. He weighs 20ibs. His pediatric cardiologist has gradually increased it...
Forum:
Help and Resources for Hemangiomas
08-19-2010, 06:13 PM
Replies:
6
Surgery a VERY real possibilty now
Views:
7
Posted By
mperron
Wishing your little angel the best!
Wishing your little angel the best!
Forum:
Help and Resources for Hemangiomas
08-15-2010, 06:42 PM
Replies:
13
Canadians going to USA for treatment
Views:
14
Posted By
mperron
Go adnama!
Go adnama!
Forum:
Help and Resources for Hemangiomas
08-12-2010, 06:42 PM
Replies:
13
Canadians going to USA for treatment
Views:
14
Posted By
mperron
I think us Canadians need to be putting pressure...
I think us Canadians need to be putting pressure on our government to pay for our children to recieve treatment for their hemangiomas rather than just accepting the typical wait and see approach...
Forum:
Help and Resources for Hemangiomas
08-04-2010, 03:49 AM
Replies:
10
How Long Do Side Effects of Steroids Last?
Views:
11
Posted By
mperron
jacobsmom; I'm sorry I can't answer your...
jacobsmom;
I'm sorry I can't answer your question as I have no experience with steroids. Just wanted to let you know that my heart goes out to you and your precious son. I always believe theirs...
Forum:
Help and Resources for Hemangiomas
07-25-2010, 02:45 AM
Replies:
13
Canadians going to USA for treatment
Views:
14
Posted By
mperron
Sorry adnama, I too have yet to hear of the costs...
Sorry adnama, I too have yet to hear of the costs being covered by the gov't. Not to say it's not worth trying to get it covered. You probably would need a doctor in Canada to agree that your son...
Forum:
Help and Resources for Hemangiomas
07-10-2010, 02:08 PM
Replies:
13
Shrinking H, airwa obstruction, sleep apnea
Views:
14
Posted By
mperron
I also hear good things about Dr. Levitin, he...
I also hear good things about Dr. Levitin, he previously worked with Dr. Waner.
Forum:
Help and Resources for Hemangiomas
07-10-2010, 02:07 PM
Replies:
13
Shrinking H, airwa obstruction, sleep apnea
Views:
14
Posted By
mperron
I'm also from Canada. I would suggest you...
I'm also from Canada. I would suggest you contact one of the doctors that specializes in this field such as Dr Waner at the new york vascular centre. You can contact him via his website. It may be...
Forum:
Help and Resources for Hemangiomas
07-08-2010, 10:27 PM
Replies:
10
propanolol and insurance
Views:
11
Posted By
mperron
Bce: Yes the medication is fairly cheap. My son...
Bce: Yes the medication is fairly cheap. My son was not hospitalized by his doctor (Dr. Waner in NYC). His fee's for consultation is about $250.00, but he was very generous and waved his fee for...
Forum:
Help and Resources for Hemangiomas
07-07-2010, 01:01 PM
Replies:
17
Strangers starring and asking questions?
Views:
18
Posted By
mperron
I know it sucks and can be hurtful with the mean...
I know it sucks and can be hurtful with the mean things strangers (and sometimes aquantinces) say to our children. I can relate personally as I had a nevi birthmark (large brown spot) on my neck...
Forum:
Help and Resources for Hemangiomas
07-07-2010, 12:56 PM
Replies:
10
propanolol and insurance
Views:
11
Posted By
mperron
BCE: We got a 3 month (500mg bottle) supply of...
BCE: We got a 3 month (500mg bottle) supply of propranolol for under $50.00. I'm from Canada but bought the propranolol in the united states. Willow you will definately find lots of discussion on...
Forum:
Help and Resources for Hemangiomas
07-07-2010, 02:00 AM
Replies:
5
propranolol- how long for its full effect to be achieved?
Views:
6
Posted By
mperron
I saw quick results (48hours) with my son's deep...
I saw quick results (48hours) with my son's deep h on the side of his nose. The first few weeks we saw vast improvement. He's been on the drug for 4 months now, and his doctor said we've probably...
Forum:
Help and Resources for Hemangiomas
07-03-2010, 12:43 AM
Replies:
4
Propranolol side effect ... appetite loss
Views:
5
Posted By
mperron
What I seem to have realized is that I tend to...
What I seem to have realized is that I tend to associate many things (i.e reflux, stomach upset) as being a side effect of propranolol when in fact they have nothing to do with the drug. It's hard to...
Forum:
Help and Resources for Hemangiomas
06-24-2010, 07:40 PM
Replies:
10
Corticosteroid Side Effects, Propranolol Instead?
Views:
11
Posted By
mperron
Sorry forgot to mention the stomach discomfort...
Sorry forgot to mention the stomach discomfort was caused by GERD (reflux)
Forum:
Help and Resources for Hemangiomas
06-24-2010, 07:38 PM
Replies:
10
Corticosteroid Side Effects, Propranolol Instead?
Views:
11
Posted By
mperron
Jacobs mom; I am so saddened to hear your poor...
Jacobs mom; I am so saddened to hear your poor little one suffer such negative side effects. From what I've researched propranolol has far fewer side effects than steroids. Of course, their will be...
Forum:
Help and Resources for Hemangiomas
06-24-2010, 07:27 PM
Replies:
11
Propranolol side effects?
Views:
12
Posted By
mperron
msaurez- My son is only taking propranolol. It...
msaurez- My son is only taking propranolol. It quickly cleared up the red discloration and their is only some slight bluish color. He has a compound H.
Forum:
Help and Resources for Hemangiomas
06-24-2010, 07:24 PM
Replies:
8
Propranolol and 3 week old infant
Views:
9
Posted By
mperron
I'm not a doctor but I would say the sleeping bit...
I'm not a doctor but I would say the sleeping bit is because of his age. I too initially thought my son was sleeping a lot but as he got older believe me he slept a lot less.
Showing results 1 to 25 of 65
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