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Search: Posts Made By: robertgouveia
Forum: AVM Help and Resources 01-24-2012, 04:44 PM
Replies: 10
Views: 11
Posted By robertgouveia
thanks corinne, i moved back to the uk from...

thanks corinne, i moved back to the uk from tampa, florida. yes, i have written to drs levitan, nelson and i spoke at length with linda. linda was a real lifesaver. she talked me through and was a...
Forum: AVM Help and Resources 01-24-2012, 04:39 PM
Replies: 10
Views: 11
Posted By robertgouveia
agreed, there are days when i count my blessings....

agreed, there are days when i count my blessings. i went in for a consultation last week and saw a little boy my sons age, with a lymphatic malformation down the entire right side of his body. i...
Forum: AVM Help and Resources 01-24-2012, 04:34 PM
Replies: 10
Views: 11
Posted By robertgouveia
thanks for responding. i was just going through...

thanks for responding. i was just going through a bit of a low moment the other day. it happens from time to time when you just wish it didn't have to be this way. most of my days are good. my...
Forum: AVM Help and Resources 01-05-2012, 10:46 AM
Replies: 10
Views: 11
Posted By robertgouveia
thanks for responding Abatie. we have already...

thanks for responding Abatie. we have already been on that doctor finding rollercoaster. now he is being seen by the head of vascular anomolies at great ormond street, so i'm comfortable that we're...
Forum: AVM Help and Resources 01-04-2012, 04:43 PM
Replies: 10
Views: 11
Posted By robertgouveia
very depressed, the complications have arrived.

my son lucas was born with a venous malformation from his hip all the way down his right leg. i noticed the problem at birth, but the seriousness only became apparent to me when he was 6 months old...
Forum: Port Wine Stain Help and Resources 12-28-2010, 01:42 PM
Replies: 1
Views: 2
Posted By robertgouveia
Photos of my son's pws

My son was born 5 months ago with darker PWS on the sole of his right foot, inner right thigh and right hip. we did a doppler where the ped derm told us that he had good circulation but some venous...
Forum: Living with a birthmark - my story 12-26-2010, 01:00 PM
Replies: 5
Views: 3,077
Posted By robertgouveia
hi Amy, my son is 5 months old and was born with...

hi Amy,

my son is 5 months old and was born with port wine stains down his right leg. a day or two after birth we had him scanned and were told that he had an extensive malformation. most of the...
Showing results 1 to 7 of 7

 
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