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Search: Posts Made By: siobhan
Forum: Help and Resources for Hemangiomas 07-26-2011, 11:58 PM
Replies: 4
Views: 5
Posted By siobhan
Hi, How old is your daughter? I heard a few...

Hi,

How old is your daughter? I heard a few people say their drs told them to wake their children during the night for feedings. I asked mine about it and she said it wasn't necessary. We started...
Forum: Help and Resources for Hemangiomas 07-26-2011, 11:55 PM
Replies: 5
Views: 6
Posted By siobhan
My doc said always give meds with food and if for...

My doc said always give meds with food and if for any reason they are not eating well skip medicine until appetite is back to normal. How scary! So sorry this happened to you and your poor little...
Forum: Help and Resources for Hemangiomas 05-10-2011, 12:20 AM
Replies: 10
Views: 11
Posted By siobhan
Hi Burtongrl, my daughter has been on propranolol...

Hi Burtongrl, my daughter has been on propranolol for months but was only put on timolol in the last few weeks when her H was almost flat. My dr told me that the propranolol is for the bulk of the H...
Forum: Help and Resources for Hemangiomas 05-10-2011, 12:16 AM
Replies: 5
Views: 6
Posted By siobhan
Hi, My daughter was prescribed propranolol at 8...

Hi, My daughter was prescribed propranolol at 8 weeks old after being cleared by a cardiologist without ever being monitored in a hospital. She is almost 8 months old and we have not had any side...
Forum: Help and Resources for Hemangiomas 05-04-2011, 01:36 AM
Replies: 11
Views: 12
Posted By siobhan
Sally, Thanks for sharing your daughter's story...

Sally,

Thanks for sharing your daughter's story and pics. My daughter Emily has H on her forehead and my pediatrician told us to wait and see and my dermatologist said the same thing but I pushed...
Forum: Help and Resources for Hemangiomas 04-29-2011, 01:16 AM
Replies: 10
Views: 11
Posted By siobhan
Hi, We went to see Dr Blei today and she said to...

Hi,

We went to see Dr Blei today and she said to stay on the meds for now. We go back again in 8 weeks. She said Emily's H is being stubborn but not to be discouraged because she is 8 months old...
Forum: Help and Resources for Hemangiomas 04-29-2011, 12:59 AM
Replies: 15
Views: 16
Posted By siobhan
Hi Shanarama, My daughter Emily is 8 months and...

Hi Shanarama,

My daughter Emily is 8 months and we see Dr Blei at Vascular Birthmark Institute in NY. We are also on propranolol and timolol. We tried to wean last month and I thought I saw...
Forum: Help and Resources for Hemangiomas 04-29-2011, 12:42 AM
Replies: 4
Views: 5
Posted By siobhan
Hi Tiffany, My daughter is 8 months and has been...

Hi Tiffany,

My daughter is 8 months and has been on propranolol since she was 8 weeks old. We tried to wean last month but I thought I saw rebound growth. We went back to dr today and it was...
Forum: Help and Resources for Hemangiomas 03-26-2011, 11:31 PM
Replies: 10
Views: 11
Posted By siobhan
It seems puffy to me only when she wrinkles her...

It seems puffy to me only when she wrinkles her forehead otherwise it is flat. I am beyond thrilled with the results. We are using the topical timolol in the evening and are back to giving 1ml of...
Forum: Help and Resources for Hemangiomas 03-25-2011, 02:42 PM
Replies: 10
Views: 11
Posted By siobhan
After propranolol what does skin look like?

My daughter has been on propranolol for 5 months. We are starting to wean her off and sometimes the skin although still pink looks flat and other times it looks a little puffy. I notice it most...
Forum: Help and Resources for Hemangiomas 12-27-2010, 09:38 PM
Replies: 10
Views: 11
Posted By siobhan
Hi, No experience with internal H but my...

Hi,

No experience with internal H but my daughter is 4 months and we will start to wean off propranolol in a month or 2. She has H on her forehead. I know there is an area on this site that you can...
Forum: Help and Resources for Hemangiomas 12-25-2010, 04:42 PM
Replies: 6
Views: 7
Posted By siobhan
We just had a 6 week follow up appt with our dr...

We just had a 6 week follow up appt with our dr and she said in a month or 2 when we start to wean my daughter off propranolol we will switch from 3 doses to 2 doses per day with 12 hours in between....
Forum: Help and Resources for Hemangiomas 12-14-2010, 02:28 PM
Replies: 13
Views: 14
Posted By siobhan
My doctor did not tell me to wake my daughter...

My doctor did not tell me to wake my daughter through the night for feedings. She has been sleeping through the night since before we started propranolol. She will be 4 months old next week. I...
Forum: Help and Resources for Hemangiomas 12-13-2010, 03:03 AM
Replies: 8
Views: 9
Posted By siobhan
Hi, My daughter has been on propranolol for 5...

Hi,

My daughter has been on propranolol for 5 weeks. She is almost 4 months old. We were not admitted to the hospital either. She has not developed insomnia and in fact LOVES to sleep which...
Forum: Help and Resources for Hemangiomas 12-13-2010, 02:48 AM
Replies: 8
Views: 999
Posted By siobhan
funny i was just searching the web today to find...

funny i was just searching the web today to find out what the possible connection is between placental problems and hemangiomas. i have a 3 year old daughter without H that was born via emergency...
Forum: Help and Resources for Hemangiomas 12-13-2010, 02:41 AM
Replies: 20
Views: 21
Posted By siobhan
In addition to Dr Waner, if he is saying...

In addition to Dr Waner, if he is saying propranolol is the treatment modality, your daughter will need to see a cardiologist for an echocardiogram to check her heart and be cleared for treatment. ...
Forum: Help and Resources for Hemangiomas 12-11-2010, 02:37 PM
Replies: 20
Views: 21
Posted By siobhan
Dr Francine Blei Medical Director Pediatric...

Dr Francine Blei
Medical Director
Pediatric Hematology and Oncology
Vascular Birthmark Institute
126 West 60th Street
212-523-8931
Forum: Help and Resources for Hemangiomas 12-11-2010, 02:34 PM
Replies: 20
Views: 21
Posted By siobhan
Hi EverlyRosesMommy, We had exactly the same...

Hi EverlyRosesMommy,

We had exactly the same situation. My daughter who will be 4 months on the 20th of Dec has compound H on her forehead. We were also told to wait and see by my pediatrician and...
Forum: Help and Resources for Hemangiomas 12-11-2010, 02:23 PM
Replies: 7
Views: 8
Posted By siobhan
mom of 3, thanks for your reply. Was there a...

mom of 3, thanks for your reply. Was there a change in dose before the second drastic improvement?
Forum: Help and Resources for Hemangiomas 12-11-2010, 02:19 PM
Replies: 6
Views: 7
Posted By siobhan
We have been giving our 4 month old daughter .85...

We have been giving our 4 month old daughter .85 ml 3 times a day every 6-8 hours. Going back to the doctor next week and we may be increasing the dose.
Forum: Help and Resources for Hemangiomas 12-08-2010, 01:42 AM
Replies: 7
Views: 8
Posted By siobhan
Thanks you tashiestamp and clare08 for your...

Thanks you tashiestamp and clare08 for your responses. My daugther has been on propranolol for almost 4 weeks and I have to keep comparing pictures of her in order to actually see the changes...
Forum: Help and Resources for Hemangiomas 12-08-2010, 01:39 AM
Replies: 4
Views: 5
Posted By siobhan
Thanks for your responses. I am going to start...

Thanks for your responses. I am going to start to talk to my daughter about how to respond when people ask questions if she wants to be involved in the conversation or how to tell me it is upsetting...
Forum: Help and Resources for Hemangiomas 12-04-2010, 02:27 AM
Replies: 4
Views: 5
Posted By siobhan
sibling upset by insensitive comments

Hi All,

My 3 month old daughter has H on her forehead. We are giving her propranolol and it's much smaller and lighter in color but people are still very insensitive with their comments, like,...
Forum: Help and Resources for Hemangiomas 11-24-2010, 02:35 AM
Replies: 13
Views: 14
Posted By siobhan
Hi, My 3 month old daughter has been on...

Hi,

My 3 month old daughter has been on propranolol for almost three weeks. So far I have not seen any side effects. My sister is a nurse and said to call our doctor if she is lethargic or...
Forum: Help and Resources for Hemangiomas 11-19-2010, 01:31 PM
Replies: 7
Views: 8
Posted By siobhan
propranolol-how long did it take?

Hi All,

My 3 month old daughter has been on a full dose (.85 mg 3x day) of propranolol for almost 2 weeks. We saw a dramatic improvement in the first few days before she was even on the full dose...
Showing results 1 to 25 of 25

 
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