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Search: Posts Made By: EricaJones
Forum: Port Wine Stain Help and Resources 10-19-2011, 10:26 AM
Replies: 13
Views: 14
Posted By EricaJones
Update

I thought I would follow-up after my daughter's appointment (since I hate when I look for answers online, only to find someone else with my issue that has no resolution. But anyways, LOL!). My...
Forum: Port Wine Stain Help and Resources 09-22-2011, 10:30 AM
Replies: 13
Views: 14
Posted By EricaJones
Just wanted to keep you up to date. Children's...

Just wanted to keep you up to date. Children's Hospital called me yesterday afternoon. They asked if I could bring in my daughter on the 18th of October. The woman didn't say what the doctor's...
Forum: Port Wine Stain Help and Resources 09-21-2011, 09:59 AM
Replies: 13
Views: 14
Posted By EricaJones
Dr. Nelson is wonderful! He contacted me so...

Dr. Nelson is wonderful! He contacted me so promptly!

I definitely will keep you informed when I hear from Children's. I really hope it will be today. I am not sure how quickly I will get the...
Forum: Port Wine Stain Help and Resources 09-20-2011, 06:14 PM
Replies: 13
Views: 14
Posted By EricaJones
Too funny! Anyways, I am not sure when I will get...

Too funny! Anyways, I am not sure when I will get in to see the doctor. I sent all my information to our Children's Hospital (12 page application and photos!) Hemangioma and Vascular Malformation...
Forum: Port Wine Stain Help and Resources 09-20-2011, 10:13 AM
Replies: 13
Views: 14
Posted By EricaJones
Thank you for your quick response. I sent Dr....

Thank you for your quick response. I sent Dr. Nelson a message. I can't get a picture of the inner thigh part only, because it is mainly in the crease of the thigh between the right labia and upper...
Forum: Port Wine Stain Help and Resources 09-19-2011, 06:08 PM
Replies: 13
Views: 14
Posted By EricaJones
PWS on Genitalia?

My daughter is 16 weeks old and has a red birthmark on her vulva and inner thigh. She also has a few "islands"of color on her inner upper thigh and by her hip bone. She has had this since birth and...
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