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Forum: Help and Resources for Hemangiomas Today, 02:24 AM
Replies: 1
Views: 2
Posted By smurph
Hi there! I would definitely get the referral...

Hi there! I would definitely get the referral because of the hemangioma's location. The specialist will be able to go over some options. Hopefully someone will chime in here about nasal tip...
Forum: Help and Resources for Hemangiomas 05-22-2013, 02:07 AM
Replies: 1
Views: 2
Posted By smurph
Hi there! I'm not too knowledgeable about...

Hi there! I'm not too knowledgeable about hemangiomas near the eye, but it looks promising that it is so flat. Since he is only 8 1/2 months old it probably hasn't really started to involute on its...
Forum: Help and Resources for Hemangiomas 05-20-2013, 08:37 PM
Replies: 7
Views: 8
Posted By smurph
Ghaidaa, This is the place to come if you have...

Ghaidaa,
This is the place to come if you have questions! :) I don't have all the answers but hopefully we can help you find your way to someone who can give you more information about your...
Forum: Help and Resources for Hemangiomas 05-18-2013, 03:22 AM
Replies: 7
Views: 8
Posted By smurph
Hi there! There's a good chance that what you...

Hi there! There's a good chance that what you have is not technically a hemangioma. Sometimes doctors refer to all vascular anomalies as hemangiomas but what you are describing sounds like a...
Forum: Help and Resources for Hemangiomas 05-14-2013, 12:51 AM
Replies: 9
Views: 10
Posted By smurph
I'm not sure how things work in Canada compared...

I'm not sure how things work in Canada compared to the US but I think it would be helpful to see a specialist to see what options are offered for treatment-timilol? propanolol? You can also wait to...
Forum: Help and Resources for Hemangiomas 05-10-2013, 03:27 AM
Replies: 1
Views: 2
Posted By smurph
Awesome! Thanks for sharing!!! Shannon

Awesome! Thanks for sharing!!!
Shannon
Forum: Help and Resources for Hemangiomas 05-10-2013, 03:24 AM
Replies: 2
Views: 3
Posted By smurph
HI Krista, Being a new mom can be overwhelming...

HI Krista,
Being a new mom can be overwhelming and exhausting and then to have something unexpected like this come up it can be pretty stressful. So how you are feeling is certainly understandable....
Forum: Help and Resources for Hemangiomas 05-01-2013, 01:19 AM
Replies: 7
Views: 8
Posted By smurph
Hi! I was going to echo what Missy said. I would...

Hi! I was going to echo what Missy said. I would get it checked by a specialist because of its location near his eye. Good luck and welcome to the forum!
Shannon
Forum: Help and Resources for Hemangiomas 04-16-2013, 03:55 AM
Replies: 2
Views: 3
Posted By smurph
Hi! My daughter has an upper lip hemangioma. She...

Hi! My daughter has an upper lip hemangioma. She is 8 years old now and has just a trace of it left. She was on oral steroids at first and then had surgery when she was 5, and then 2 laser...
Forum: Help and Resources for Hemangiomas 04-11-2013, 03:34 AM
Replies: 12
Views: 13
Posted By smurph
Great to hear! Have a great trip and appt.!...

Great to hear! Have a great trip and appt.! :)

Shannon
Forum: Help and Resources for Hemangiomas 03-29-2013, 12:54 AM
Replies: 5
Views: 6
Posted By smurph
I just read your reply to my daughter Faith...

I just read your reply to my daughter Faith (she's 8 now) and she had the hugest smile on her face! There were a few people who were so helpful to me when we were in your stage and I just am sooo...
Forum: Help and Resources for Hemangiomas 03-28-2013, 01:28 AM
Replies: 6
Views: 7
Posted By smurph
I looked into this a bit more and I would suggest...

I looked into this a bit more and I would suggest you email Dr. Nelson and Dr. Levitin for advice and what to look for/tell your local doctors. Also, you may use a product with zinc oxide to help...
Forum: Help and Resources for Hemangiomas 03-28-2013, 01:15 AM
Replies: 5
Views: 6
Posted By smurph
Do you mean you emailed the doctors and didn't...

Do you mean you emailed the doctors and didn't hear back? Sometimes it takes a few days. If it makes you feel any better, I ALWAYS had second thoughts about my daughter's procedures-her surgery and...
Forum: Help and Resources for Hemangiomas 03-28-2013, 01:02 AM
Replies: 9
Views: 10
Posted By smurph
Hi! I will definitely email you! The laser...

Hi!
I will definitely email you! The laser actually didn't hurt her much after the fact. The first time she had anesthesia and the second time was numbing cream. I was in the room with her and she...
Forum: Help and Resources for Hemangiomas 03-26-2013, 08:05 PM
Replies: 9
Views: 10
Posted By smurph
I will look into those links. I have my settings ...

I will look into those links. I have my settings set to public for those albums. Are you on Facebook? You can friend me if you like and maybe that will help. They usually work for people on here...
Forum: Help and Resources for Hemangiomas 03-26-2013, 03:19 AM
Replies: 9
Views: 10
Posted By smurph
Hi there! My daughter has a lip hemangioma as...

Hi there! My daughter has a lip hemangioma as well. Since she is 8 years old, the treatments were different back then, so I don't have any experience with propanolol. With that being said,...
Forum: Help and Resources for Hemangiomas 03-26-2013, 02:56 AM
Replies: 2
Views: 3
Posted By smurph
Ouch. That must be so terrible!! Poor baby! If...

Ouch. That must be so terrible!! Poor baby! If it were me, one question I would ask is how often the doctor has dealt with hemangiomas such as this. Perhaps they have an ointment such as xylocane...
Forum: Help and Resources for Hemangiomas 03-26-2013, 02:47 AM
Replies: 6
Views: 7
Posted By smurph
I'm sorry that your daughter is going through...

I'm sorry that your daughter is going through this. Where are you located?
Shannon
Forum: Help and Resources for Hemangiomas 03-26-2013, 02:42 AM
Replies: 5
Views: 6
Posted By smurph
I wish I had more info to give you. My daughter...

I wish I had more info to give you. My daughter had surgery on her lip hemanioma but it was her upper lip and a different situation. Where are you having the surgery done? Maybe you could get a...
Forum: Help and Resources for Hemangiomas 03-24-2013, 11:34 AM
Replies: 3
Views: 4
Posted By smurph
Hi there! Just wanted to welcome you to the...

Hi there! Just wanted to welcome you to the forum. My daughter had a lip hemangioma as well, but she is 8 years old now and the treatments back then were different than they are now. I know lots of...
Forum: Help and Resources for Hemangiomas 03-09-2013, 03:11 AM
Replies: 19
Views: 20
Posted By smurph
I know. I've been there. Not knowing is the...

I know. I've been there. Not knowing is the hardest part. Let us know how it goes! :)
Shannon
Forum: Help and Resources for Hemangiomas 03-08-2013, 08:28 PM
Replies: 19
Views: 20
Posted By smurph
Hi there! I'm glad you found this forum. It can...

Hi there! I'm glad you found this forum. It can be hard at the beginning because it is difficult to know how big it will grow- especially when you start looking around at pictures online! Sometimes...
Forum: Help and Resources for Hemangiomas 03-08-2013, 03:35 PM
Replies: 6
Views: 7
Posted By smurph
Great news! :) Shannon

Great news! :)
Shannon
Forum: Help and Resources for Hemangiomas 03-08-2013, 03:34 PM
Replies: 19
Views: 1,452
Posted By smurph
Also where are you located? Shannon

Also where are you located?
Shannon
Forum: Help and Resources for Hemangiomas 03-08-2013, 03:33 PM
Replies: 19
Views: 1,452
Posted By smurph
Hi- I'm so sorry you are going through all this....

Hi-
I'm so sorry you are going through all this. It must be terribly painful and frustrating. I'm not 100% of who would be the best person to consult but perhaps you might start by sending an email...
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