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Search: Posts Made By: BriellesMum
Forum: Help and Resources for Hemangiomas 05-27-2009, 07:25 PM
Replies: 1
Views: 735
Posted By BriellesMum
Brielle's Post-op picture!

Brielle had her surgery with Dr Waner last Wed 5/20 and she is doing amazingly well!! She doesn't even know the stitches are there.

We are so greatful to Dr Waner and his staff/colleagues. They...
Forum: Help and Resources for Hemangiomas 05-18-2009, 05:57 PM
Replies: 1
Views: 587
Posted By BriellesMum
MSNBC "Change in Face" series

Does anyone know if it will be re-aired and if we're able to get a copy?

Did anyone watch it last night 5/17. Did they show the any images of the conference?
Thanks
Forum: Help and Resources for Hemangiomas 05-18-2009, 05:52 PM
Replies: 3
Views: 742
Posted By BriellesMum
We're off to NYC for Brielle's surgery!!

It's finally here! We're off to NYC tomorrow for Brielle's pre-op appt with Dr Waner and then surgery on Wednesday. We're excited and scared. We know she is in the BEST hands and she will be fine,...
Forum: Help and Resources for Hemangiomas 03-30-2009, 06:57 PM
Replies: 2
Views: 567
Posted By BriellesMum
Hotel or Housing recommendations in NYC

Hello everyone:

Brielle is having her operation with Dr Waner on May 20th and we're looking for suggestions on where to stay.

Anyone stay at a hotel near the hospital (Beth Israel - 1st Ave and...
Forum: Help and Resources for Hemangiomas 03-26-2009, 06:22 PM
Replies: 4
Views: 823
Posted By BriellesMum
HELP - Confused by Insurance! What is or isn't covered?? Frustrated

Well, now that Brielle is 9mths old old weighs 23lbs we've decided to go ahead and have the surgery and have Dr Waner perform it. Her H has grown (mostly outward) and there is little involution. We...
Forum: Help and Resources for Hemangiomas 11-13-2008, 05:41 PM
Replies: 3
Views: 692
Posted By BriellesMum
The importance of Education - How important a site like this is for any parent!

Wanted to give a quick update. We took Brielle to see Dr Honig at CHOP and as expected, we didn't get much from the visit. In fact, we were a little upset at some of his remarks and overall I felt...
Forum: Help and Resources for Hemangiomas 10-15-2008, 04:27 PM
Replies: 11
Views: 1,735
Posted By BriellesMum
Colleen: We're fortunate to have insurance that...

Colleen:

We're fortunate to have insurance that does not require referrals. Our pediatrician is in Delaware, we love her, but she has no true experience with Hemangiomas. She's of the 'wait and...
Forum: Help and Resources for Hemangiomas 10-13-2008, 09:10 PM
Replies: 11
Views: 1,735
Posted By BriellesMum
Smile My daughter, Brielle (16 weeks), has a very...

My daughter, Brielle (16 weeks), has a very similar hairline hemangioma as your daughter's. All the Dr's we have seen has recommended the 'wait and see' approach. It is very reassuring to see that...
Forum: Help and Resources for Hemangiomas 09-09-2008, 05:46 PM
Replies: 17
Views: 2,515
Posted By BriellesMum
Hello everyone: Well we took Brielle to see Dr...

Hello everyone:

Well we took Brielle to see Dr Vander Kolk yesterday and we left with mixed emotions. We really like and respect Dr Vander Kolk - we appreciated his direct and honest approach and...
Forum: Help and Resources for Hemangiomas 09-05-2008, 05:55 PM
Replies: 17
Views: 2,515
Posted By BriellesMum
Hi bsmom: We are seeing Dr Craig Vander Kolk in...

Hi bsmom:

We are seeing Dr Craig Vander Kolk in Baltimore. He was referred to us by a physician friend. He has experience with Hemangiomas.

We see him Monday afternoon. I will let you know...
Forum: Help and Resources for Hemangiomas 09-05-2008, 02:06 PM
Replies: 17
Views: 2,515
Posted By BriellesMum
Thanks for the post lpm. I noticed you're from...

Thanks for the post lpm. I noticed you're from Philadelphia - I work in Radnor and we live in Wilmington, DE. We have an appt with Dr Honig at CHOP on Oct 22nd and an appt this Monday with a...
Forum: Help and Resources for Hemangiomas 09-04-2008, 03:58 PM
Replies: 17
Views: 2,515
Posted By BriellesMum
Will Insurance cover surgery for her Hemangioma?

Hello:

We are new to this site and would love some input/advice. We have a beautiful and healthy, 11 week old baby girl, Brielle, who has a hemangioma on her forehead. When she was born we noticed...
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