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Search: Posts Made By: KsMOM
Forum: Help and Resources for Hemangiomas 03-03-2011, 05:31 PM
Replies: 10
Views: 11
Posted By KsMOM
One of my brother's had a hemangioma on his...

One of my brother's had a hemangioma on his eyelid as a baby...he's the only one out of 5 siblings...not sure if that's the norm or not. His was not very large, but did require some patching to...
Forum: Help and Resources for Hemangiomas 02-15-2011, 12:48 PM
Replies: 7
Views: 8
Posted By KsMOM
Thanks missy :)

Thanks missy :)
Forum: Help and Resources for Hemangiomas 02-14-2011, 10:51 PM
Replies: 7
Views: 8
Posted By KsMOM
Thanks missy, I sent some to you! :)

Thanks missy, I sent some to you! :)
Forum: Help and Resources for Hemangiomas 02-14-2011, 01:21 PM
Replies: 7
Views: 8
Posted By KsMOM
We're back! Update!

Hi there... :)

Just thought I'd leave an update on Kayleigh's H and using the 'wait and see' approach. As most of you know, it began to ulcerate before we lost the NICU back in December and the scab...
Forum: Help and Resources for Hemangiomas 01-14-2011, 01:12 AM
Replies: 11
Views: 12
Posted By KsMOM
We haven't been to see a pediatric dermatologist...

We haven't been to see a pediatric dermatologist yet, but her pediatrician is going to refer us to someone he knows. You're in Nassau right?? Who did you guys go to??
Forum: Help and Resources for Hemangiomas 01-13-2011, 11:41 PM
Replies: 11
Views: 12
Posted By KsMOM
Katie- Thanks for the info! I really hope it...

Katie- Thanks for the info! I really hope it doesn't start growing again!! And yes, we probably would wait till she's bigger if we chose to remove it...just out of curiousity, how complicated of a...
Forum: Help and Resources for Hemangiomas 01-13-2011, 11:37 PM
Replies: 11
Views: 12
Posted By KsMOM
Thanks ladies! She has been doing well at...

Thanks ladies! She has been doing well at home...she has been home for a month today actually and is over 7lbs now. We think she might have some reflux because she vomits sometimes, but other than...
Forum: Help and Resources for Hemangiomas 01-13-2011, 09:28 PM
Replies: 11
Views: 12
Posted By KsMOM
Kayleigh Update!

Hi again!
As you all know my daughter's a 26 weeker with a hairline H. It had started to ulcerate in early/mid December. Both her Ped and Neonatologists that she sees still don't want to do anything...
Forum: Help and Resources for Hemangiomas 01-05-2011, 02:22 PM
Replies: 30
Views: 31
Posted By KsMOM
My daughter's on Elecare too! The stuff is crazy...

My daughter's on Elecare too! The stuff is crazy expensive...I can't imagine having to get it for two babies!! :o
Forum: Help and Resources for Hemangiomas 01-05-2011, 02:20 PM
Replies: 30
Views: 31
Posted By KsMOM
gilana- I am in a similar boat right now. My...

gilana- I am in a similar boat right now. My daughter's hairline Hemangioma started to ulcerate about month ago and last week at one of her doctor's appointments a small bit of the scab came off and...
Forum: Help and Resources for Hemangiomas 12-09-2010, 02:45 AM
Replies: 4
Views: 5
Posted By KsMOM
Like antibiotic ointment or something?? Should we...

Like antibiotic ointment or something?? Should we start putting in on now?

Oh, I also just found out some good news today, she might be coming home early this week!! So keep your fingers crossed for...
Forum: Help and Resources for Hemangiomas 12-08-2010, 10:14 PM
Replies: 4
Views: 5
Posted By KsMOM
Update...

Kayleigh's H def looks like it's going to ulcerate, well to me at least...but the doctors are still not concerned and think it's involuting. ugh. She's also getting an MRI done tomorrow morning, just...
Forum: Help and Resources for Hemangiomas 12-06-2010, 04:01 PM
Replies: 11
Views: 12
Posted By KsMOM
Yes, we are facebook friends! lol, I was thinking...

Yes, we are facebook friends! lol, I was thinking your daughter looked very familiar for some reason...duhh.

I love seeing how it changes, esp when given no treatment...cause that is the route we...
Forum: Help and Resources for Hemangiomas 12-06-2010, 03:58 PM
Replies: 12
Views: 13
Posted By KsMOM
She's had a lot of problems with her digestive...

She's had a lot of problems with her digestive system, this has been one of her biggest struggles. She had a spontaneous perf in her intestines at 1 week old (so no feeds for about a month), then...
Forum: Help and Resources for Hemangiomas 12-06-2010, 04:06 AM
Replies: 11
Views: 12
Posted By KsMOM
Oh, btw she's gorgeous!!!! :)

Oh, btw she's gorgeous!!!! :)
Forum: Help and Resources for Hemangiomas 12-06-2010, 04:05 AM
Replies: 11
Views: 12
Posted By KsMOM
Just wondering, how big did her H get (like size...

Just wondering, how big did her H get (like size of a dime or quarter???)
Forum: Help and Resources for Hemangiomas 12-06-2010, 04:04 AM
Replies: 12
Views: 13
Posted By KsMOM
Just wanted to share a picture of my beautiful...

Just wanted to share a picture of my beautiful girl's whole face! lol...since I only put up the H.

She really is a cutie if I do say so myself. ;)
Forum: Help and Resources for Hemangiomas 12-04-2010, 04:58 AM
Replies: 4
Views: 5
Posted By KsMOM
Aw, I have no advice, but just wanted to tell you...

Aw, I have no advice, but just wanted to tell you that you have such a wonderful little girl!! How sweet of her to be so protective of her little sister. I wish people would be more sensitive on what...
Forum: Help and Resources for Hemangiomas 11-30-2010, 07:17 PM
Replies: 12
Views: 13
Posted By KsMOM
Thanks guys bub- Docs are watching it...but...

Thanks guys

bub- Docs are watching it...but just want to leave it alone (at least for now), and I do agree with them (I just can't see putting her on meds after her body has been through so much,...
Forum: Help and Resources for Hemangiomas 11-30-2010, 03:22 PM
Replies: 12
Views: 13
Posted By KsMOM
Ugh, Hemangioma Blues

Now it really looks like Kayleigh's H is eventually going to ulcerate. I feel so angry...like she doesn't have enough medical problems, this just adds to the complications and there isn't much I can...
Forum: Help and Resources for Hemangiomas 11-28-2010, 04:54 PM
Replies: 15
Views: 16
Posted By KsMOM
I did give Dr. Waner a brief history of her...

I did give Dr. Waner a brief history of her medical problems, though I'm sure I left out some things because it's a lot to remember!

I'm glad the NICU is at least looking into it a little more now...
Forum: Help and Resources for Hemangiomas 11-27-2010, 02:20 AM
Replies: 15
Views: 16
Posted By KsMOM
How long does it take to ulcerate once you see...

How long does it take to ulcerate once you see that color change??

They actually had a neurologist come in and check it out to make sure it is not growing deeper than norma....he wasn't concerned,...
Forum: Help and Resources for Hemangiomas 11-26-2010, 02:39 PM
Replies: 15
Views: 16
Posted By KsMOM
No we haven't had her home yet...not sure when....

No we haven't had her home yet...not sure when. She's had a lot of intestinal problems and just started feeds again (through a feeding tube) last week. Hopefully soon they will start to introduce a...
Forum: Help and Resources for Hemangiomas 11-26-2010, 02:57 AM
Replies: 15
Views: 16
Posted By KsMOM
Yea, I wrote in the email to him that she was a...

Yea, I wrote in the email to him that she was a 26 weeker and only weighed 1lb40z. Oh he actually said Propranolol...I thought that was a type of steroid, but I guess it's not..? I probably won't...
Forum: Help and Resources for Hemangiomas 11-26-2010, 01:55 AM
Replies: 15
Views: 16
Posted By KsMOM
I heard back from Dr. Waner today, he said it...

I heard back from Dr. Waner today, he said it would most likely have to be removed and that I should start her on steroids. I don't understand why he'd be so quick to want to put her on steroids, she...
Showing results 1 to 25 of 31

 
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