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Search: Posts Made By: kemeyers
Forum: Announcements 05-16-2011, 02:13 PM
Replies: 0
Views: 1
Posted By kemeyers
Blog

Hi everyone - I wasn't sure where to post this, as we do not easily fall into one of the "typical" birthmark categories.
I just wanted to share my blog - I am a mom to 2 wonderful girls, the youngest...
Forum: Port Wine Stain Help and Resources 01-14-2011, 04:52 PM
Replies: 8
Views: 9
Posted By kemeyers
Thanks everyone. It's funny, I WAS...

Thanks everyone. It's funny, I WAS "armed" with cards I had made up explaining vascular malformations. I actually have not yet been able to make it through one trip outside our house without someone...
Forum: Port Wine Stain Help and Resources 01-13-2011, 01:13 PM
Replies: 8
Views: 9
Posted By kemeyers
Laser treatment

Hi,
My 9 month old daughter started her laser treatments this week. I had hoped to stay home in the few days after, but we had a bad snowstorm coming and I had to get some errands done. She has a...
Forum: Help and Resources for Hemangiomas 04-29-2010, 01:06 PM
Replies: 6
Views: 7
Posted By kemeyers
Thanks! We are actually heading up to Boston on...

Thanks!
We are actually heading up to Boston on Monday to meet with Dr. Fay and probably get started on propanolol. Rose, the patient advocate, called me yesterday and spent a lot of time going over...
Forum: Help and Resources for Hemangiomas 04-28-2010, 01:52 PM
Replies: 6
Views: 7
Posted By kemeyers
Thanks. We were evaluated yesterday by a team of...

Thanks. We were evaluated yesterday by a team of doctors. They also answered my questions, although they weren't able to say that they'd seen any babies that haven't had them grow, but qualified that...
Forum: Help and Resources for Hemangiomas 04-26-2010, 02:23 PM
Replies: 6
Views: 7
Posted By kemeyers
New to hemangioma world

Hi,
My daughter was born 3 weeks ago (at 37 weeks) with multiple hemangiomas on her face and one on her spine. We are going to the Vascular Anomalies clinic at Children's National Medical Center in...
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