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Search: Posts Made By: lpm
Forum: Help and Resources for Hemangiomas 05-28-2010, 07:14 PM
Replies: 6
Views: 7
Posted By lpm
Is this a question about congenital hemangiomas...

Is this a question about congenital hemangiomas (RICH or NICH) versus the more "typical" hemangioma?

The congenital hemangiomas do not grow after birth. If you mean that the "typical" hemangioma...
Forum: Help and Resources for Hemangiomas 05-26-2010, 12:58 AM
Replies: 8
Views: 9
Posted By lpm
Regarding the MRI - My youngest had an MRI on...

Regarding the MRI -

My youngest had an MRI on her head at 2 months. She was sedated, not under GA. She started to wake up and move, so they gave her more but she still was half awake, so they...
Forum: Help and Resources for Hemangiomas 03-30-2010, 09:40 PM
Replies: 3
Views: 4
Posted By lpm
I've been to two conferences: one in Boston,...

I've been to two conferences: one in Boston, about two weeks prior to my youngest child's second surgery, and one in NYC, a couple of years after the second surgery.

It was just my youngest and me...
Forum: Help and Resources for Hemangiomas 02-04-2010, 10:42 PM
Replies: 9
Views: 10
Posted By lpm
The delay in vaccinations is typically when the...

The delay in vaccinations is typically when the child is on steroids, and then you only delay giving the live vaccines (until after the child is weaned off of the steroids). The first live vaccine...
Forum: Help and Resources for Hemangiomas 01-30-2010, 12:42 PM
Replies: 91
Views: 92
Posted By lpm
First, congrats on the new baby, and try not to...

First, congrats on the new baby, and try not to stress out too much. While no one can tell you with absolute certainty how things will turn out, I think that if you have not seen very rapid growth...
Forum: Help and Resources for Hemangiomas 01-30-2010, 12:33 PM
Replies: 2
Views: 3
Posted By lpm
My youngest has not had laser, but had a steroid...

My youngest has not had laser, but had a steroid injection at 7.5 months (and had been on oral steroids from 2 months until 5.5 months). With the injection, we saw some limited improvement within...
Forum: Help and Resources for Hemangiomas 01-08-2010, 12:51 PM
Replies: 4
Views: 5
Posted By lpm
I left a post on another thread...compound h on...

I left a post on another thread...compound h on head...but I do not recall scarring. I forgot to add to my other post that while the injection (and earlier oral steroids) temporarily slowed or...
Forum: Help and Resources for Hemangiomas 01-08-2010, 02:13 AM
Replies: 17
Views: 18
Posted By lpm
My youngest had a steroid injection at 7.5...

My youngest had a steroid injection at 7.5 months, and had been on oral steroids from 2 months to 5.5 months old. I do not recall any scarring - though this was 5 years ago so I may not recall...
Forum: Help and Resources for Hemangiomas 11-17-2009, 11:51 AM
Replies: 5
Views: 364
Posted By lpm
My youngest was 11 months for the first surgery...

My youngest was 11 months for the first surgery and 2 years, 4 months for the second (more or less a scar revision). She needs one more surgery - to clean up the scars - but we will have that done...
Forum: Help and Resources for Hemangiomas 11-17-2009, 02:06 AM
Replies: 5
Views: 364
Posted By lpm
While it is possible that a hemangioma can grow...

While it is possible that a hemangioma can grow back, I don't know that it would be noticable three days after surgery. My youngest had two surgeries with the same doctor that performed your child's...
Forum: Help and Resources for Hemangiomas 11-06-2009, 12:43 AM
Replies: 1
Views: 309
Posted By lpm
My youngest had two surgeries with Dr. Reinisch. ...

My youngest had two surgeries with Dr. Reinisch. Dr. Jumper was the anesthesiologist both times. He is a great guy and puts the kid (and parents) at ease.

By the way, insurance usually does not...
Forum: Help and Resources for Hemangiomas 10-28-2009, 10:53 AM
Replies: 3
Views: 360
Posted By lpm
It depends upon the kid - our youngest was on...

It depends upon the kid - our youngest was on oral steroids for 3.5 months and was never cranky. Steroids, like any medication, affect different people in different ways. Even when we skipped the...
Forum: Help and Resources for Hemangiomas 08-17-2009, 10:34 AM
Replies: 4
Views: 696
Posted By lpm
Of course, my personal experience consists of a...

Of course, my personal experience consists of a "study" of one hemangioma case, but of my three kids:

Eldest - 10th percentile head size

Middle - 95th percentile head size

Youngest (only one with...
Forum: Help and Resources for Hemangiomas 08-01-2009, 03:27 AM
Replies: 3
Views: 585
Posted By lpm
My youngest saw Dr. Hyde - first at DuPont at...

My youngest saw Dr. Hyde - first at DuPont at Bryn Mawr, then at Jefferson for insurance reasons.

She was the first doctor I could find to prescribe steroids, so we continued to see her. She has...
Forum: Help and Resources for Hemangiomas 05-02-2009, 01:13 AM
Replies: 11
Views: 1,238
Posted By lpm
How long did they say it would be to "fit...

How long did they say it would be to "fit her in" at the specialist? I found that most in the Philadelphia area took a long time, and some were not that helpful (all the more frustrating after a...
Forum: Help and Resources for Hemangiomas 03-07-2009, 12:32 PM
Replies: 5
Views: 592
Posted By lpm
We are in the Philadelphia area too - though we...

We are in the Philadelphia area too - though we had to go to CA for our youngest's two surgeries (CHOP refused until age 4).

Both surgeries were outpatient, and she was released about an hour after...
Forum: Help and Resources for Hemangiomas 02-13-2009, 11:16 AM
Replies: 10
Views: 1,295
Posted By lpm
Personally, I would not be too worried at this...

Personally, I would not be too worried at this point. My niece had a hemangioma that was almost the same (both location and growth rate). I have seen a number of cases of forehead hemangiomas that...
Forum: Help and Resources for Hemangiomas 02-12-2009, 09:34 PM
Replies: 8
Views: 754
Posted By lpm
Hemangiomas typically ulcerate during periods of...

Hemangiomas typically ulcerate during periods of rapid growth. Ulcerations can be painful, plus they can leave scars. I would look for treatment - where are you located? Maybe someone here can give...
Forum: Help and Resources for Hemangiomas 01-28-2009, 11:52 AM
Replies: 8
Views: 904
Posted By lpm
My youngest had/has a hemangioma on the right...

My youngest had/has a hemangioma on the right cheek, as well as one on top of the head. She started oral steroids at 2 months old. Dose was 2.8 mg/kg, then increased to 4.2 mg/kg since the...
Forum: Help and Resources for Hemangiomas 01-10-2009, 01:01 PM
Replies: 4
Views: 1,034
Posted By lpm
There are a number of doctors you could see for a...

There are a number of doctors you could see for a second opinion. Depends on your location, insurance, etc.

My youngest had/had two hemangiomas. The larger one was on her right cheek just below...
Forum: Help and Resources for Hemangiomas 12-30-2008, 03:04 AM
Replies: 3
Views: 722
Posted By lpm
My youngest had a steroid injection for a...

My youngest had a steroid injection for a hemangioma just under the eye when she was 7.5 months old. For steroids to have any effect, the hemangioma must still be growing. The injection did stop...
Forum: Help and Resources for Hemangiomas 11-12-2008, 10:46 AM
Replies: 9
Views: 1,104
Posted By lpm
Cost can vary from doctor to doctor and also...

Cost can vary from doctor to doctor and also depends upon your particular case, though $15K sounds like a reasonable ballpark figure.

I think if you look at some cases on these boards and others,...
Forum: Help and Resources for Hemangiomas 09-27-2008, 10:38 AM
Replies: 4
Views: 1,045
Posted By lpm
While my child has not had any laser yet, we will...

While my child has not had any laser yet, we will likely go to Dr. Geronemus when we decide to go ahead with the laser. As I mentioned before, he was very willing to do the laser, right then, at our...
Forum: Help and Resources for Hemangiomas 09-19-2008, 01:49 AM
Replies: 4
Views: 1,045
Posted By lpm
Dr. Low knows a lot about hemangiomas, and he is...

Dr. Low knows a lot about hemangiomas, and he is a nice guy, but he is conservative. Laser would not have helped my youngest much (at least when we saw Dr. Low, when she was 7.5 months old). I...
Forum: Help and Resources for Hemangiomas 09-06-2008, 02:03 AM
Replies: 17
Views: 2,515
Posted By lpm
We live in Radnor. We first saw a plastic...

We live in Radnor. We first saw a plastic surgeon at St. Christopher's when she was 6 weeks old, then a dermatologist at Jefferson at 2 months (who prescribed oral steroids), then went to CHOP a few...
Showing results 1 to 25 of 53

 
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