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Posts Made By:
KatieG
Forum:
CMTC
07-04-2012, 11:59 PM
Replies:
1
Update
Views:
2
Posted By
KatieG
That is great news!
That is great news!
Forum:
Port Wine Stain Help and Resources
07-04-2012, 02:42 AM
Replies:
13
PWS on Leg - Concerned parent - what to look for
Views:
14
Posted By
KatieG
I think KT syndrome is only diagnosed through an...
I think KT syndrome is only diagnosed through an MRI I believe. I know when they suspected it in my daughter (and it has not been ruled out) that is what they said but we opted to wait as her leg...
Forum:
Port Wine Stain Help and Resources
07-03-2012, 02:05 AM
Replies:
7
PWS - foot & anke - our 2 month old daughter
Views:
8
Posted By
KatieG
My daughter has been diagnosed with a "port...
My daughter has been diagnosed with a "port wine like" marking on her leg. Nothing showed up until she was 8 weeks old and it progressively got worse until she was one. She sees one of the top...
Forum:
Help and Resources for Hemangiomas
07-03-2012, 02:02 AM
Replies:
7
Forehead Hemangioma surgery success!
Views:
8
Posted By
KatieG
He looks great! who did his surgery?
He looks great! who did his surgery?
Forum:
Port Wine Stain Help and Resources
07-03-2012, 02:01 AM
Replies:
13
PWS on Leg - Concerned parent - what to look for
Views:
14
Posted By
KatieG
My daughter has a port wine like stain on her...
My daughter has a port wine like stain on her left leg from the knee down. We see a birthmark specialist in NYC. Hers was not present at birth, rather started showing up around 2 months of age. If...
Forum:
Help and Resources for Hemangiomas
06-09-2012, 01:24 AM
Replies:
3
Dr. Hochman in SC?
Views:
4
Posted By
KatieG
I don't, but I know Dr. Waner in NYC recommends...
I don't, but I know Dr. Waner in NYC recommends him also.
Forum:
Port Wine Stain Help and Resources
05-01-2012, 03:21 PM
Replies:
6
Life with an unmanagable PWS
Views:
7
Posted By
KatieG
Thanks for sharing your story!
Thanks for sharing your story!
Forum:
Port Wine Stain Help and Resources
04-21-2012, 02:13 PM
Replies:
10
2 month old baby with large PWS
Views:
11
Posted By
KatieG
My daughter had treatments on her leg. She came...
My daughter had treatments on her leg. She came home and never was bothered by anything. There was never an open sore, her leg just looked discolored. Good luck!
Forum:
Help and Resources for Hemangiomas
04-08-2012, 03:44 PM
Replies:
5
Surgery is booked!
Views:
6
Posted By
KatieG
good luck! For me the biggest shock was seeing...
good luck! For me the biggest shock was seeing my child after surgery. I was so used to her hemangioma being there you know? I lost it when I saw her come out of surgery LOL.
As for your son,...
Forum:
Help and Resources for Hemangiomas
03-30-2012, 02:28 AM
Replies:
5
Preemie born with 2 possibly 3 H's. Have you seen this one?
Views:
6
Posted By
KatieG
I think you emailed me today, but if you didn't,...
I think you emailed me today, but if you didn't, yes I do think that is a deep H. My daughters was compound so it had some red speckles on top, but the part under the skin looked just like that.
Forum:
Help and Resources for Hemangiomas
03-30-2012, 02:27 AM
Replies:
3
Hemangioma/Propranolol Progression Pictures.
Views:
4
Posted By
KatieG
Amazing! Thanks for posting!
Amazing! Thanks for posting!
Forum:
Help and Resources for Hemangiomas
03-13-2012, 07:44 PM
Replies:
8
5 weeks old, not sure what to do
Views:
9
Posted By
KatieG
First of all, take a deep breath. We have all...
First of all, take a deep breath. We have all been there and its so overwhelming.
If you don't want to wait and see, then don't. You can email a specialist or even go see one. If its near her...
Forum:
Help and Resources for Hemangiomas
03-07-2012, 12:58 AM
Replies:
1
Help.. my sons head!
Views:
2
Posted By
KatieG
Do you have pictures? I would worry about it...
Do you have pictures? I would worry about it pushing on the hemangioma as well.
Forum:
Youth and Teen Support
02-27-2012, 09:08 PM
Replies:
8
numbness in feet
Views:
9
Posted By
KatieG
Do you have any pictures?
Do you have any pictures?
Forum:
Port Wine Stain Help and Resources
02-25-2012, 09:08 PM
Replies:
10
son with PWS on torso - what do we do?
Views:
11
Posted By
KatieG
Our doc actually said that laser works better on...
Our doc actually said that laser works better on the body than on extremities. My daugther's is on her leg and after 2 laser treatments we have not seen much change.
Forum:
Help and Resources for Hemangiomas
02-05-2012, 01:37 AM
Replies:
21
Ulcerated hemangioma near rectum and underside of scrotum (3 week old infant)
Views:
22
Posted By
KatieG
Yes he needs to be seen ASAP by a specialist. I...
Yes he needs to be seen ASAP by a specialist. I think there is a Dr. in South Carolina possibly. Could you travel there?
Forum:
Help and Resources for Hemangiomas
02-02-2012, 01:34 PM
Replies:
7
Timolol - your experience? And mine
Views:
8
Posted By
KatieG
My daughter had a compound Hemangioma in front...
My daughter had a compound Hemangioma in front of her soft spot on her head. We had it removed. Let me know if you want to see pics!
Forum:
Help and Resources for Hemangiomas
02-02-2012, 01:32 PM
Replies:
3
Successful surgery Photo in post
Views:
4
Posted By
KatieG
She looks great!
She looks great!
Forum:
General Resources
01-29-2012, 01:37 PM
Replies:
3
Angiokeratoma? What?
Views:
4
Posted By
KatieG
Can I ask if this was present at birth? or did...
Can I ask if this was present at birth? or did it show up after birth?
My daughter has VERY similar markings on her left leg in the same pattern as yours. I have been told it is not a port wine...
Forum:
Port Wine Stain Help and Resources
12-03-2011, 09:24 PM
Replies:
7
If your child has a PWS...
Views:
8
Posted By
KatieG
My daughter has a port wine stain/vascular mark...
My daughter has a port wine stain/vascular mark on her leg. It goes from the bottom of her foot up to her knee in a spotty pattern. She is currently on her 2nd laser treatment (at 19 months old). ...
Forum:
Help and Resources for Hemangiomas
11-30-2011, 02:43 AM
Replies:
17
New Here, Questions about Birthmarks
Views:
18
Posted By
KatieG
Those look like hemangiomas to me. See what your...
Those look like hemangiomas to me. See what your doc says and don't be afraid to see a specialist. There are lots of things that can be done to prevent it from growing further. Good luck!
Forum:
Help and Resources for Hemangiomas
11-22-2011, 01:52 AM
Replies:
8
Hair on Hemangioma?
Views:
9
Posted By
KatieG
My daughter had hers removed at 4.5 months by Dr....
My daughter had hers removed at 4.5 months by Dr. Waner in NYC. I live in the NYC area. Let me know if I can help in any way. My daughter is now 19 months old and you can't even tell she ever had...
Forum:
Help and Resources for Hemangiomas
11-18-2011, 05:29 PM
Replies:
8
Hair on Hemangioma?
Views:
9
Posted By
KatieG
My daughter had a hemangioma on the top of her...
My daughter had a hemangioma on the top of her head and we had it removed so it would not interfere with her hair line. She did have some hair growing out of it at the time, but it was towards her...
Forum:
Help and Resources for Hemangiomas
11-12-2011, 11:37 AM
Replies:
14
just diagnosed with Hemangiomas at 8 wks
Views:
15
Posted By
KatieG
My daughter has had surgery and laser treatment. ...
My daughter has had surgery and laser treatment. I actually found the laser surgery to be quite easy. I think she was only under for a total of 5 minutes and woke up happy as a clam! It wasn't as...
Forum:
Help and Resources for Hemangiomas
10-31-2011, 05:16 PM
Replies:
7
10 week old with Deep Hemangioma on top of head
Views:
8
Posted By
KatieG
My daughter had a large deep hemangioma in front...
My daughter had a large deep hemangioma in front of her soft spot. It grew to the size of a golf ball and we ended up having it removed.
If you are concerned just ask for a referral to a...
Showing results 1 to 25 of 143
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