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Search: Posts Made By: NevaehsNana
Forum: Help and Resources for Hemangiomas 02-15-2011, 04:23 PM
Replies: 15
Views: 16
Posted By NevaehsNana
Yes they did dx her with PHACES but we will be...

Yes they did dx her with PHACES but we will be returning for another appointment to get more answers. I will keep you posted.

Thanks,
Kathy
Forum: Help and Resources for Hemangiomas 02-14-2011, 05:19 PM
Replies: 15
Views: 16
Posted By NevaehsNana
We are so Thankful we took her to Seattle...

We are so Thankful we took her to Seattle Children's Hospital. Without looking at her the doctor knew it was a Subglottic airway H. They confirmed it with a scope they were able to do in the office....
Forum: Help and Resources for Hemangiomas 02-14-2011, 04:37 PM
Replies: 16
Views: 17
Posted By NevaehsNana
I have learned a lot over the past 4 weeks as my...

I have learned a lot over the past 4 weeks as my granddaughter has several on her face and one in her airway. We had to take her to the regional Children's Hospital in Seattle to get answers as every...
Forum: Help and Resources for Hemangiomas 01-31-2011, 05:09 PM
Replies: 15
Views: 16
Posted By NevaehsNana
Breathing issues are back! We are taking her to...

Breathing issues are back! We are taking her to her pediatrician because the hospital wants her to go back to ER which is just racking up the bills! We are going to request an MRI of her whole body....
Forum: Help and Resources for Hemangiomas 01-29-2011, 07:26 AM
Replies: 15
Views: 16
Posted By NevaehsNana
They did a bronchioscope the 1st time she was...

They did a bronchioscope the 1st time she was admitted to the hospital but it only showed swelling so they said it was croup. They sent her home but after 24 hours off the steroids they gave her she...
Forum: Help and Resources for Hemangiomas 01-26-2011, 08:13 AM
Replies: 15
Views: 16
Posted By NevaehsNana
Breathing Problems with hemangiomas

My granddaughter is 3 weeks old. She has a hemangioma on her chin which extends into her mouth, she also has one on each side of her face near her ears. The one on her chin has sores on it but our...
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