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Search: Posts Made By: MIKE B
Forum: Youth and Teen Support 06-03-2014, 07:08 PM
Replies: 6
Views: 7
Posted By MIKE B
Thanks Kelly, good luck with your treatment.

Thanks Kelly, good luck with your treatment.
Forum: Youth and Teen Support 04-28-2014, 05:31 PM
Replies: 6
Views: 7
Posted By MIKE B
Thanks so much Niamh. Did you ever recieve...

Thanks so much Niamh. Did you ever recieve treatment for your VM? If so what kind? Have you had success?

Mike B
Forum: Youth and Teen Support 04-04-2014, 04:58 PM
Replies: 6
Views: 7
Posted By MIKE B
thanks

Thanks so much for the response. It was very helpful.

How is your 2 year old doing? Has he/she begun to ask any querstions about the PWS?

Mike B
Forum: Youth and Teen Support 03-25-2014, 08:20 PM
Replies: 6
Views: 7
Posted By MIKE B
Venous Malformation and self esteem

Hi

My 1.5 year old daughter has a venous malformation in her left hand and arm. It has gotten more noticable over the past few months, and she is starting to notice the difference in her two hands....
Forum: AVM Help and Resources 03-18-2014, 08:44 PM
Replies: 4
Views: 5
Posted By MIKE B
compression garments for VM

Thanks so much for the response and for looking into it for me. We appreciate it. I definately want to try the compression just because I feel she is too young for any other kind of treatment...
Forum: AVM Help and Resources 03-12-2014, 05:27 PM
Replies: 4
Views: 5
Posted By MIKE B
reply from Mike B

Hi Missy,

The doc's at CHOP did not think compression would work for my duaghter because her fingers were so small. They basically did not think we would be able to get it on her effectively....
Forum: AVM Help and Resources 03-12-2014, 02:36 AM
Replies: 4
Views: 5
Posted By MIKE B
compression garments for VM

Hi,

M 1.5 year old has a venous malfomation in her left hand/fingers and arm. We have been to Columbia in NYC and CHOP in Philly and have gotten different opiniins on whether to use compression...
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