Vascular Birthmarks Foundation Forum - View Single Post - port wine and k-t syndrome
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Old 10-16-2006, 01:44 PM
ombry ombry is offline
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Join Date: Oct 2006
Location: italy
Posts: 1
Default port wine and k-t syndrome

i'm 33 years old, i'm form italy and i was born with port wine for the 80% of my body specially on the right part.
I know that is impossible to remove it from over the skin, but i would like to be better in my face, i've port wine on the right and a mouth like in sturge-weber syndrome.
The most important think is that during my adolescence i have had big problem on my right leg with ulcers and the risk of loosing my foot.
Anyone didn't explain to me the reason for this problem, only 4 years ago i found a doctor who soke about k-t syndrome.
I think that i have both of port wine and k-t, and the problem remain, noone here is in the position to help me and i'm leaving in this way, but i would like to change my life style, i have till now ulcers on the right leg (completely red for the port wine), but now i don't know where to go!
If someone can give me an help, please reply to me.
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