If you go to the msn group Missy mentioned.
http://groups.msn.com/vascularbirthm..._whatsnew.msnw and on the menu look under malformations...I have everyone listed by type... you can then post a message to a specific person you found on that list or click on their user name and see if they've added their email address to their profile page. If you have any questins, please feel to contact me.