hi my 2 nd daughter isabel was born with a port wine stain on her face, we where first told it was a bruise until 3 days later when the news was broken to me when my partner was at home there is a possibilatie she may have sturdge webbers syndrome as well, we are going to see a consultant today to find out where we go from from here. I have no idea, I understand how you feel you just dont know whats coming next well I shall let you know.