Kim, I feel the same way you do sometimes. All this waiting and seeing just kills me. I am the type who wants to get things done NOW. There are days I drive myself crazy looking up every little detail I can about PWS so that I can have some sort of clue as to what the future holds for my daughter. And most of the time, I come out more worried than relieved. I'm afraid, and I hate it. And I worry that somehow I did something to make this happen to her, and then I feel overwhelming guilt and I don't even know why.
Just wanted you to know that you're not alone on your bad days...