Vascular Birthmarks Foundation Forum - View Single Post - Issues with gums
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Old 05-17-2007, 12:13 PM
samanthasmom samanthasmom is offline
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Join Date: Jan 2007
Posts: 21
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I'm with you both... I have struggled with the fact that most of the syndromes associated with PWS can present up to a few years of age. You can be so happy and carefree one day and then the fear can come on like a wave and you worry constantly of what might happen in the future.

I try not to let the "what if's" get in the way of enjoying being a mother to my sweet little girl, but on my bad days it's pretty hard not to think about it. Hang in there.
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