I am from Greater London and my 10 month old daughter has a superficial hemangioma by her eye (about the size of a 10p). Dr Levitin suggested surgery although Dr Syed at GOSH suggested we wait and see, so we opted for the latter. Amazingly the hemangioma seems to be changing quite a bit, although we did opt for 2 months of oral steroids which have been great. Have you contacted GOSH? They have been fantastic.
From Amber (India's mummy)