I don't know of anyone who is local for you but we did use Dr. Fay. We sent them some pictures initially and he told us to come see him. We had to travel from Florida but it was 100% worth it! He removed Brett's H because it was growing so fast and was starting to move across the eye. Now it is like it never happened. I am thankful everyday that I kept pushing for more information besides what I got from my local pedi & pedi opto. They just didn't know enough about it for me to feel comfortable. You just have to follow your gut on this as there seem to be many different views on how to handle.
Good luck! I know it is scary!