It sounds like you had a different doctor to the amputation and then had Dr Upton clean it up. What did he do to "Clean it up"?
I have an avm on my cheek...can't really amputate there! It came back 10 years after a surgeon hoped he had removed it. I'm just starting my research to see what I should do now. I'm hopeful they've made some advancements in this condition over the past decade.