I also know what it is like growing up with a large birth mark.
I have a PWS that covers the majority of the right side of my face.
It is pretty dark red/purple. The past few years I have noticed that I am getting thickening in areas,along with little bumps.( laser seems to take them away for a while ) but they come back .
I also have the PWS in the right side of my mouth and down my throat.
I have had pulse dye laser 10 times( didn't seem to do much good, and was a pretty nasty recovery )
I have also had a few treatments of photoderm laser. That seemed to lighten it some.
I am 28, married and have 4 children.
If any one wants advise, or just a friend that knows what you are going through and feeling. I am here to talk .