After an angiogram the diagnosis terminology was corrected to (intramuscular) venous malformation. The vascular specialists (Drs Murray and Zylak) at Inland Vascular in Spokane had already mentioned Dr. Yakes in Denver for treatment after the MRI. We have been in Denver for 3 days and will have treatment tomorrow. From everything I could find on the topic, Dr Yakes seems to have this down to an art form.
We also had an insurance caseworker check for treatment in Seattle, but concured with our referral to Denver.
Step 1 for us is to stop the growth and then see if the area will return to normal size. His treatment methods are said to prevent regrowth, where surgery may not.