Vascular Birthmarks Foundation Forum - View Single Post - Infant with VBM on Head and Nuerological Issues on One Side
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Old 04-17-2008, 10:13 AM
quinnysmom quinnysmom is offline
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Join Date: Jul 2006
Location: sault ste marie, ontario Canada
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Please have your child tested for PHACES Syndrome ASAP especially if there are any signs of neurological issues. Children with hemangiomas of the head and neck are at risk for PHACES www.phacesasssocation.com.

An MRI sounds like it should be done to check for arterial anomalies in the brain and to ensure that proper bloodflow is present. I know this sounds concerning but I would insist on the MRI asap. Children with PHACES are at risk for stroke and I am worried about what you are noticing on the hemangioma side.

Please email me at jenniferduncan@phacesassociation.com because I want to help point you in the right direction. Follow your instincts right now and insist that she be imaged with MRI/MRA.

Jen Duncan
PHACES Advocate
Mom to Quinn 23 Months
www.quinnduncan.com
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