Vascular Birthmarks Foundation Forum - View Single Post - grandbaby's hemangioma
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Old 05-07-2008, 12:54 AM
EJsMommy EJsMommy is offline
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Join Date: Mar 2008
Location: Travis AFB, Fairfield, CA
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Hi Sara,

You should document the Hemangioma and its growth with photos and send any info you can to a specialist in Vascular Anomalies. I am going to see Dr. Waner (the best there is) for treatment of my daughter's Hemangioma. He will consult via email, although he is very busy, and he will get back to you. Chemo sounds like a lot to put a young baby through, but maybe there are other options that you could find out from a specialist in the field.

I hope that everything works out. Most doctors do not understand the emotional strain that Hemangiomas put on families of babies, especially since you just want them to be O.K. and happy.

Please hang in there and be strong. I hope you can get some answers from someone who knows Hemangiomas!
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