I believe I checked this sight 2-3 years ago when lookig for help & support for my son' facial AVM. At that time I was unsuccessful. My son is 13 & we have been dealing with this for almost 4 years. I am looking to find others with children who are deaing with similar issues. The many embolizatins, infections, picc lines, surgeries, doctors, medications have finally caught up with my son. I want him to be able to talk to others who are or who have been in the same boat.
I just began starting up my own group for those with facial AVM's on yahoo.
I thought to check here again & I see there are some of you out there.
We need help. Things have gotten a bit devasting here!