Boston Children's Hospital is a great place to go. They have a wonderful vascular anomalies clinic and team that you can stay with long term for all follow up care throughout the years. I would have liked to go there myself, but my family could not afford it. If you can skip the surgery and do sclerotherapy(injections) instead, I would definitely recommend trying that first. I also think having a biopsy done is a good idea just to make sure they know exactly what they are dealing with.
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