Sorry to hear youhave had such a bad time with your venous malformation. Sweet pea has mentioned bleomycin treatment offered by Tobian Muir at the james cook. My daughter has a venous malformation on her lip and has been recieving this treatment. I'm not sure who sweet pea is talking about but it may be my daughter as we were featured on the news in relation to this treatment. Tobian Muir is fantastic. He is extremely knowledgable on these birthmarks and is DEFINATELY worth going to see. We don't live anywhere near this hospital but I got my gp to refer my daughter. She has had 4 treatments and her venous malformation has all but gone. Before seeing Tobian Muir we were given all sorts of information by doctors which was basically wrong. There are very few side affects to this treatment and the success rate is high. I cannot recomend seeing him highly enough. Have you got your gp to refer you yet?