Please contact Lise Daoust . She has an AVM in her lip and has had treatment for it. firstname.lastname@example.org
She has a French website. It is http://www.anomalievasculaire.org/
Lise speaks English and was very helpful to me. Our daughter has an AVM in her hand. I know that Lise did not have embolization to her lip because of the risks. If you need any more advice, please feel free to contact me.