Vascular Birthmarks Foundation Forum - View Single Post - Help
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Old 11-29-2009, 02:05 PM
missy missy is offline
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Join Date: Apr 2006
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We don't know of anyone in OK. Or at least there is no one on our list.

Which is closer to you, Dallas, Austin, or Houston? We do have many listings for Texas that might be available to you.

Now, I thought the criteria for SWS was a facial PWS with Seizures OR Glaucoma. If your child has a facial PWS and Glaucoma, then he shouldn't he be diagnosed with SWS?

We have an expert on that, Dr. Comi. If you haven't written to her before, take time to do so now. She is great at answering questions. http://birthmark.org/experts.php

Also, if you haven't been to our SWS Chapter site, now's the time to go:
http://swscommunity.org

Missy
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