Vascular Birthmarks Foundation Forum - View Single Post - Help with 6 yr old with CMTC
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Old 12-09-2009, 07:15 PM
kristinagriffing kristinagriffing is offline
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Also, I have had 4 doctors now give us a formal diagnosis of CMTC but no one knows what to do about it and/or says you don't do anything for it. Just thought I would let you know. Once I found CMTC myself and started asking the docs what they thought, they have all agreed, but again don't have any other data beyond this.

Missy, are there any doctors specifically studing CMTC and doing research of any kind on this subject?
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