Vascular Birthmarks Foundation Forum - View Single Post - Hemangioma on Nose
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Old 01-30-2010, 01:05 AM
bumfuzzle bumfuzzle is offline
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Join Date: Jan 2010
Posts: 37
Default Hemangioma on Nose

Hello Everyone,

My wife and I are Americans currently living in Mexico. We had a baby girl seven weeks ago. About three weeks later she had the spot on her nose. Like most, we at first assumed she'd just bumped against my collar bone or something. It didn't go away, and yesterday we got the news that it is Hemangioma.

The dermatologist told us not to worry, to just monitor it and get back to her in a month. We agreed, until we got home and got on the internet. Now we are absolutely freaking out. We've got an appt. with a different dermatologist on Tues.

We are not at all the passive wait and see type people and already want to take a proactive approach to it. But we're still trying to get a grip on what exactly this all means.

Our biggest question is what are the chances that this thing won't get any bigger? It's already gotten a tiny bit larger in the past four weeks. From the internet you get the impression that they all end up very big. Is this true, or just a case of only the worst cases getting talked about?

We're also very intrigued by the Propranolol drug. From everything we've read here it has done amazing things. Our hope is that by moving quickly on this we can at least stop its growth.

Anyway, we're new to this and have spent the day researching and crying and we could use any advice any of you might have for us.

Lastly, we're wondering if anybody knows of a doctor in either Minnesota (St. Paul area) or Oregon (Portland area) that has been using Propranolol? We've got family in these areas.





Thank you all.
Pat and Ali Schulte

Last edited by bumfuzzle : 06-05-2010 at 04:05 PM.
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