You guys are not alone, my 2 1/2 year old has a large PWS on his torso, strictly on his left side. Doctors also said this was a harmless birthmark since birth. Recently, he has had 2 instances of scabbing on the dark,purple area, about 1mm or less in diameter. After this being dismissed by the first pediatrician, we are now going to have a MRI on his spinal cord to see if there are any other abnormalities or issues that might affect him later. Apparently there are other complications that CAN come with PWS.
Has anyone experienced or read anything remotely similar to this?