Vascular Birthmarks Foundation Forum - View Single Post - PWS and possible KT Syndrome - freaking out a little!
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Old 03-21-2010, 05:43 AM
June23rd2010 June23rd2010 is offline
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Have you seen a doctor since your last post? I too thought I had KT syndrome and when I got in to see Dr. Driscoll and his colleagues at the Mayo Clinic in Rochester, I found out I've got the even more rare vascular condition called Servelle Martorell Syndrome so you might want to ask your doctor if it could be that as well.

Good Luck!
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