Though i don't have any factual information or advice, I came across your post, and I just wanted to share with you my personal experience with a PWS. I am 15 and was born with a PWS on my forehead and the area around my eye, and though I don't know if my parents were worried or not, I've been getting laser treatments since a young age, and now at age 15, it is almost completely removed, and is invisible with makeup. I just thought you might want to know that your baby can still lead a completely normal social life, and most kids are very accepting of the birthmark- most kids when I was younger simply asked me what happened (thinking it was a bruise) and were accepting of it. In fact, a lot of my friends have urged me to not get it completely removed because it makes me an individual.
I just thought it might be comforting to know that I turned out completely normal, even with a big pink birthmark on my face