Hi everyone, I'm new to this site. My son Julian has 2 hemangiomas, one on his forehead and one on the left side of his butt. They just keep getting bigger (he is 13 weeks old) with no signs of stopping. The one on his forehead has turned a darker red with occasional scabbing and flaking, while the other is still a bright cherry red.
We have an appointment with a specialist at UCSF (Dr. Frieden) on October 4 and I plan to ask her about propranolol. Did any of you have difficulty getting your doctor to prescribe it? Have you noticed any side effects? Were your kids hospitalized for the first few days of treatment?
Levi looks amazing, I cannot even see the one on his neck, and his nose looks great. He is truly a beautiful little boy! I'm trying to figure out how to post some pics of Julian, any tips?