Kelly--I am liking the results of propanolol too. I see your son must have started around 8 months? My daughter started around 5 months and she is now almost 13 months. I was kind of bummed when we started to ween her off and her hemangioma went back up. Any talk of when you will be weening your son off? Would love to talk with you more on this.
Deep hemangioma on left eyebrow towards nose
Started propanolol Feb. 11th, 2010
Off of propanolol aprox. June 2011
Takes 3 doses per day at 1.3ml
2nd Weaning of prop. not a success back on it March 22. Only one dose of 1.3ml now Baby girl is 19 months old
She is two years old now and is off of propanol completely but we do timolol gel twice a day.
Would gladly talk to anyone who has questions on propanolol.