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Interestingly enough, the official classification for my A.V.M. is "CM-AVM" and despite what you see written in different texts, it is hereditary. The "CM" is an abbreviation for "Capillary Malformation" for which the gene RASA1 was discovered and identified in 2007 if I am correct. You can web search it and find a few things about it. Dr. Upton mentioned it to me when I was at his office this past Spring for an evaluation.
Best wish's for your treatment and just be sure to see experts before making any decisions.
Take care all!