Just to update, Millie has her first appointment with a specialist, Dr Wagner (Chicago), on Thursday. She's one of the experts listed here and she was recommended by the pediatrician when I showed her the letter from Dr Levitin. They're not in a hurry to see Kaylie though, but she'll come along to the appointment anyway as I'm hoping to discuss what they think of hers too. I'm kind of nervous, I know decisions will have to be made eventually and I hope we don't come to regret them!
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