My 15 month old daughter was diagnosed with an orbital hemangioma at 7 weeks via a MRI. We have a team of 11 specialists that treat her as in all our research throughout the last year we have found no doctors, with the exception of one orbital specialist, who has seen such a case. Are there any other fellow cases on the forum? She has been treated with propanolol since 8 weeks and we have had great success with the treatment but are still seeking fellow cases. Thank you!