Vascular Birthmarks Foundation Forum - View Single Post - New here, 1 mo. old baby w large Hemangioma
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Old 05-12-2011, 10:11 PM
twinmommy twinmommy is offline
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Join Date: Apr 2011
Posts: 32
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We got in to CHLA, they were willing to accept the HMO price and Ruby saw the specialist (director) yesterday. They are doing something unique there, they compound their own medicine like propranolol (I wish I could remember the name of it, but I can't) without the risk to heart and airway.... this way they can use it on small premies!

The good news is, she starts immediately, the bad news is, the med has a shelf life of 14 days so we have to drive to downtown LA every 2 weeks. Worse things could happen so we'll count it as an adventure I guess.

Her right eye is opening up more. Opth. gave us eye patches she has to wear over here good eye to force the bad to open (man does that frustrate her!!).

If it wasn't for this forum I wouldn't have made contact with the specialist who put the fire under my butt to get her seen immediately. Thank you all!!!
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