My daughter has an upper lip hemangioma so I'm not sure if it's that similar to your daughter's, but she did have an ulceration as baby too as you mentioned. Here's a photo journal of our experience. Maybe it will help? She is now 6 years old. She took steroids as a baby, had surgery at age 5 to fix the ulceration scar/debulk/shape her lip and laser a couple months ago to touch up above her lip.
Let me know if you have any questions!