Vascular Birthmarks Foundation Forum - View Single Post - went to boston childrens hospital....
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Old 06-13-2011, 04:01 AM
smurph smurph is online now
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Join Date: Jan 2007
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Hi!

Where are you from? We live in NH and we have been going to Boston Childrens since my daughter was born (6 years ago.) She has a lip hemangioma. She sees Dr. Mulliken there. She did steroids from about 10 week of age up until about 10 months or so. She did very well on the meds with minimal side effects. It really stunted the growth of the hemangioma and helped with the ulceration she had. I don't think propanolol was really offered back then (another drug used nowadays). My daughter also had surgery last year and just had laser this year. One of my other daughters also has a hemangioma on her hand/wrist and she also went to Childrens. She has had no treatment and it's involuting on its own. Everyone at Childrens has been wonderful! We have been so happy. Here's some pics of my daughters' journeys if you would like to see:

http://www.facebook.com/media/set/?s...l=a18fd285 c7

http://www.facebook.com/media/set/?s...l=1b4cbdd4 36

Let me know if you have any questions!
Shannon
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