Vascular Birthmarks Foundation Forum - View Single Post - PWS on Genitalia?
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Old 09-20-2011, 07:14 PM
EricaJones EricaJones is offline
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Join Date: Sep 2011
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Too funny! Anyways, I am not sure when I will get in to see the doctor. I sent all my information to our Children's Hospital (12 page application and photos!) Hemangioma and Vascular Malformation Center. All the doctor's get together to review all current and new cases Wednesday's between 8am and 10am. They are going to review my daughter's case tomorrow morning. They will decide then how soon they would like to see her. Keep your fingers crossed for us!

Dr. Nelson responded to my question. I did not send him the photos, but am willing so I can get his professional opinion. He told me that the genitals are an unusual place for PWS and to get in to see a pediatric dermatologist. He also said it sounds like a hemangioma. Everything I have read and seen has made me think PWS. I always thought hemangiomas weren't flat like this is. It probably would help if he saw the photos. I sent him an e-mail asking if he wanted to see them. I will keep you posted. Thank you so much!
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