I am a thirty year old female who was born with a vascular birthmark on my vulva. *When I was about thirteen years old it started causing me pain. I was around twenty when I first started receiving treatment. I have had three embolizations (1 with biological glue and 2 with coils); two surgeries to surgically remove the veins; and schlerotherapy twice. *I am still experiencing significant pain and the veinous malformation has now spread all over the area. *I was wondering if this is an area that anyone is familiar with. *My doctors know of no one who can help and the older I get the worse I get. *If you or anyone you know is able to assist with this matter would you be so kind as to reply.