Vascular Birthmarks Foundation Forum - View Single Post - Adults With Phace Syndrome? Anyone?
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Old 01-24-2012, 12:30 AM
smurph smurph is offline
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Join Date: Jan 2007
Posts: 400
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HI there! I'm sorry that I don't really have any information to offer but I just wanted to suggest that maybe you could email one of the PHACE experts on the panel here??? Good luck on your search for answers and more information. I think there may be people/families on here who might be able to help you in this way. This site is a great resource. I will check with one of the other Moms I have met on here because she may be more aware of a network of children with PHACES and maybe some adults too. I'll post more later if I find anything out. Have a good night!
Shannon
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