YES!! Please seek another opinion ASAP!!
My daughter Jaylee has an upper lip/nose h. We followed our ped. & did the "wait & see"!!
Big Mistake!! It ended up affecting her eating. We ended up in the emergency room
She is now going on her 2nd surgery to remove the h from her lip & reconstruct both her lip & nose.
We've done steroids to make an immed. stop on the growth then to Vin Cristin to keep the growth down (so it would not affect her eating/breathing) until we did the first surgery in Oct. 2003.
If you have any questions you can e-mail me or you can find me in the msn support group post.
Best wishes for you & your family
Joanne (daughter Jaylee)