Vascular Birthmarks Foundation Forum - View Single Post - Daughter has a hemangioma on lip and in mouth. I need advice!
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Old 03-24-2004, 01:17 PM
Joanne
 
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Default Re:Daughter has a hemangioma on lip and in mouth. I need advice!

YES!! Please seek another opinion ASAP!!

My daughter Jaylee has an upper lip/nose h. We followed our ped. & did the "wait & see"!!
Big Mistake!! It ended up affecting her eating. We ended up in the emergency room !
She is now going on her 2nd surgery to remove the h from her lip & reconstruct both her lip & nose.
We've done steroids to make an immed. stop on the growth then to Vin Cristin to keep the growth down (so it would not affect her eating/breathing) until we did the first surgery in Oct. 2003.
If you have any questions you can e-mail me or you can find me in the msn support group post.
Best wishes for you & your family
Joanne (daughter Jaylee)
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