Vascular Birthmarks Foundation Forum - View Single Post - Vinchristine anyone???
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Old 04-18-2012, 02:16 PM
ruthless009 ruthless009 is offline
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Join Date: Feb 2012
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Boston said this is how they would treat it and yeah we heard back last week. Met with our guy here and he said he has never seen such a tough case since it wraps into his vocal cords and pressing on the airway. We had a bit of an eye opening experince in that this is way more serious then we were lead to beleive. I have already been in contact with Chicago and they should have a plan for us by end of next week. I think this will be our answer I just feel so have he has to go through all of this. It may mean a trach and some time on a ventilator due to the region and swelling that can occur... that scares the crap out of us. But I know they will do a good job and we'll get through this.
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