Vascular Birthmarks Foundation Forum - View Single Post - 2 month old baby with large PWS
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Old 04-27-2012, 02:22 AM
swaltjen swaltjen is offline
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Join Date: May 2011
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Quote:
Originally Posted by abatie View Post
CMTC only seems worse because so little is known about it and laser does not help. I promise that the information I have given you about the CMTC group will be of a huge benefit to you. That is why the Facebook group of families is so good because we provide a wealth of knowledge and experience to each other. You find very quickly that someone else has had a similar experience and you don't feel alone.
Abatie, can I view the CMTC Facebook page, or is it private? My son was diagnosed with PWS almost a year ago, and I still wonder if maybe it's CMTC. I was wondering if maybe some people post photos and I can compare... I know every case is different, I just haven't seen any other PWS like my little guys. Thank you!!

Sarah
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